Raising Kellan
By Marsh Naidoo, PT
Episode 154: Zack Wilson's Art Exhibition
In today's podcast I chat with Zack Wilson, and his parents Anne Marie and Tom Wilson. Zack is an individual with Down syndrome, a recent graduate of Eagle Access here in Dyersburg TN, an avid CrossFit competitor and an artist. He will he hosting his first art exhibition at McIvers Grant Public Library in Dyersburg TN on November 6, 2025 from 4 - 6 PM.
Please come see us if you can!
Episode 153. 31 in 31 - Faith Conversation with Maleia Evans from the Authentically You Network Podcast
Today's episode is a great conservation with Maleia Evans from the Authentically You Network Podcast.I chat with Maleia about how her concept for 31 in 31: Conversations with Proverbs 31 women - a series she launched on her podcast.
I often get asked about the origin story of Raising Kellan. I am super grateful to Maleia for telling our story on Episode 8 of the 31 in 31 series centered on faith and family.
Here are your links to listen.
Watch on YouTube: https://tinyurl.com/31in31Ep8MarshNaidoo
Listen on Spotify: https://tinyurl.com/31in31Ep8MarshNaidooSpotify
*** Please note that an event discussed in this episode that was scheduled for Oct 11th has been postponed***
Episode 152: Rising Above Dads Podcast with Steve Chatman
Steve Chatman is Vice President of Rising Above Ministries and host of the Rising Above Dads Podcast. Steve and his wife Lori have five children and four grandchildren. Steve is a special-needs dad as two of his children are living with Down Syndrome. Steve spent 30 years in church ministry before joining Rising Above Ministries in 2022. He loves encouraging and equipping families and churches. In this episode we chat about:
Timeline:
00:46 Introduction and Steve's Bio.
04:00 Weekend Respite Program By the Brook & Base Camp.
06:00 How do wives give permission for husbands to rest. "What special needs dads want you to know but don't
tell you about"
11:26 Communication between partners. How do you ask for a break or respite?
15:15 Find 30 minutes a week (suggestive but by no means minimum) to connect regard scheduling and updating partners
17: 00 Rising Above Dads Podcast
22:00 Conclusion
Related Episode 146
Episode 151. Student Leadership at U.S. Values and the Constitution Series.
We have exactly two weeks till U.S. Values and the Constitution, a free 4 part series taking place at McIvers Grant Public Library from Sept 11, 2025 to October 2, 2025- 5:30 to 6:30 PM.
In today's episode Mary Palmer and Marsh Naidoo chat with some of the student leadership namely: Mickie Thach and Myren Hurst about their roles in the program.
Timeline from unedited podcast:
3:35 Introductions
4: 28 Why did y'all decide to get involved with this program?
10: 59 What is something adults need to know about how students see history?
13:11 Prior to planning for series how much background did y'all have on the founding documents.
18: 03 What are the current Issues on young people's minds.
20: 00 Flip the Script - Students ask the questions.
20:04 How did this program come about?
22:24 What are your current perspectives about the U.S?
29: 03 Students perspective of meeting with Dr Stafford.
31:05 Conclusion
N.B: Lillian Davis is an integral part of student leadership. She was covering an event for her school paper at the time of the interview. We look forward to our post series interview!
Episode 150. Pediatric Day at Discovery Park of America
In today's episode I chat with Clare Saum, Marketing Director at Discovery Park of America about an exciting upcoming event: Pediatric Day. This day connects families with a wealth of local resources and services to support children’s health, learning and well-being.
• When: Saturday, Sept. 13, 2025, from 10 a.m. to 2 p.m.
• Where: Discovery Park of America (Union City, Tennessee)
• What’s happening: Vendors and organizations will be located throughout the park with information and fun, hands-on activities for families. Children can pick up a passport, collect a sticker from each organization and receive a fun activity prize when completed.
• Admission highlight: Thanks to our sponsor, Pediatric Place of Union City, and Dr John Bates admission for children ages 17 and under is covered that day.Key messages
• Follow Discovery Park of America on Facebook and Instagram for updates @discoveryparkuc
Episode 149: U.S. Values and the Constitution.
Marsh Naidoo, Mary Palmer, and Dr. Matthew Stafford chat about a four-part series on U.S. values and the Constitution that Dr. Stafford will be teaching at the McIvers Grant Public Library in Dyersburg, Tennessee. The series will cover the history and values behind the U.S. Constitution, with the aim of inspiring pride and hope in the audience by connecting them to the American story. The sessions will take place on Thursdays from September 11 to October 2, and will include a mixed media art contest where the public can submit their visions of "My America". Local students will also be involved in supporting the educational experience.
Timeline of the podcast:
1: 40 Dr Matthew Stafford’s origin story.
4: 00 What is the relevance of history, how this is chronicled and how is it relayed from generation to generation?
5: 34 Was there a particular moment or mentor that sparked your interest in history or education Dr Stafford?
8: 27 In a world where you are constantly bombarded with information, what would be your advice on referencing validated sources of history?
10:52 So how do you handle the messy parts of history?
12:51 Tell us more about the four part series US values and the Constitution and the outline of what you will be teaching?
17:00 What do you hope people will still think about when they leave the library each week?
19:38 Logistics of the Series
Keep updated on the Series by following our Facebook event page.
This series is made possible thanks to an incredible lineup of the following community partners:
- McIver’s Grant Public Library
- Dyersburg State Community College
- Dyer County Historical Society
- Dyer County Schools
- Raising Kellan
- Sons of the American Revolution
- Key Corner Chapter of the American Daughters of the Revolution
- Sonic
- The Bus Stop
- Discovery Park of America
- Maple Ridge Manor
Episode 148: Care Farming Network
On today's episode, Kate Mudge leads the discussion centered on Care Farming and the collaborative network. Please check out their interactive website. https://carefarmingnetwork.org/
Timeline:
01:54 Introductions
3:08 Origin Story and the Red Wiggler
6:00 Care Farming Network Conference
8:23 Old School Farm in Nashville
10:30 Benefits of Care Farm Models to Rural Communities
13:41 How to contact Kate
17:33 Big Dream (1 Care Farm in every county in the US)
At present, there are 338 farms in the network - 3000 counties in the US!
Be sure to check out Episode 132 with Nathan Fields and Jason van Wulven from Plant for a Change.
Episode 147: Medicaid Advocacy - Call your Congressperson
Call the US Capitol at 202-224-3121 and ask to speak to your Congress Representative.
Episode 146. Live Coverage of Special Needs Resource Fair in Cookeville TN (2025)
On June 14, 2025, we were in Cookeville, TN, to participate in the Special Needs Resource Fair at Vine Branch Church. We got to chat with families, exhibitors, and service providers, including:
Dawn Fry - Attorney at Law
Selena Stewart with Omni Family of Services.
Ashley McCloud with WorkAble TN
Blake Shearer with the Tennessee Council on Developmental Disabilities
Jessica Moreles with Tennessee Caregiver Coalition
Kristie Kirby with Structured Athletics for Challenged Children (SACC)
Heidi Clopton with the Center of Development - Pediatric Therapies
Trent Mills with TN Start
Julie West and Clara with the Down Syndrome Association of Middle TN
Jenna Clarin with Autism TN and Sensory Kids Life.
Stephanie Hawkins with CASA of the TN Valley
Steve Chatman with Rising Above Ministries.
Episode 145. Church and Disability Ministry with Joni & Friends
Today I chat with Torben Jensen. He is the Ministry Relations Manager for Joni and Friends in Nashville, TN. His job focuses on helping churches of all shapes and sizes become better at including and serving families affected by disability.
Timeline of our conversation:
01:30 Torben's origin story
02:40 Joni & Friends and its beginnings. The Story of Joni Eareckson Tada.
05: 00 Programs and the Outreach Ministry
10:00 Physical vs Emotional or Relational Barriers for families experiencing disabilities and the Church
16:15 Summer Camps at Joni & Friends
22: 00 Words of encouragement and Conclusion
You can contact Torben at torben.jensen@joniandfriends.org
Episode 144. Taking care of the caregiver with Jess Ronne
Jessica Ronne is an author, speaker, podcast host at Coffee with Caregivers, associate producer of the documentary "Unseen", and caregiver advocate. She is the founder and executive director of The Lucas Project, a non-profit dedicated to providing recognition, resources, and respite support for special needs families.
She and her husband, Ryan live in Michigan with their 8 children, including their son Lucas, who has profound disabilities. Her story of beauty from ashes has been shared on The Today Show, Daily Mail, and Huffington Post, and is detailed in her memoir Sunlight Burning at Midnight. To follow the ongoing saga, she can be found at www.jessplusthemess.com or purchase her latest books, Blended with Grit & Grace, Lovin’ with Grit & Grace, and Caregiving with Grit & Grace.
Timeline
3:00 Introduction to Jess Ronne
4:36 How to ask for help as a parent and the value of consistent respite to fill your cup as a caregiver.
6:21 Where is the Village?
7:05 The Lucac Project
9:00 Coffee with Caregivers - Marsh's highlight, Episode 62 with Alice Foran.
10:00 The Intersection of Faith and Grief.
12:24 The documentary Unseen and the upcoming documentary Uncertain.
14: Jess's words of encouragement.
Episode 143: Why Caregivers Need Respite with Dr Megan Schwalm of the Tennessee Caregiver Coalition
In Episode 143, Megan Schwalm chats to us about the Tennessee Caregiver Coalition and how this nonprofit provides support to over 1 million caregivers in Tennessee.
Timeline of our conversation:
00:00 Introduction
01:36 How did Megan come into her role as President and CEO at Tennessee Caregiver Coalition?
04:42 Definition of Respite.
07:00 Programs offered by TCC include the respite voucher program, a consumer-directed reimbursement for services delivered for respite care. TCC offers opportunities for caregivers to get together, including virtual and in-person events.
10:00 Policy Changes and how this impacts Medicaid and the Administration of Community Living (ACL through the Lifespan Respite Program, which funds the work done by TCC).
14:00 How can we advocate?
16:00 Conclusion
Episode 142: Structured Athletics for Challenged Children (SACC) and Resource Fair in Cookeville TN
In this conversation, I chat with Kristie Kirby, whom I met at Partners in Policy-Making, a leadership program held by the Tennessee Council on Developmental Disability. This is a free 8 month advocacy training program.
Timeline of conversation
1:00 Introduction
2:00 Kristie is a teacher's assistant.
2:12 What is SACC?
4:00 How does the SACC program work?
5:15 Recruiting Volunteers
6:00 Upcoming Resource Fair
7:00 Exhibitors
12:00 The Resource Fair will be at the Vine Branch Church, 2262 Bowser Rd, Cookeville, on June 14 from 10 am to 2 pm
You can reach Kristie Kirby at sacccookeville@gmail.com
Episode 141: The Scope of Threat of Medicaid Cuts and what this could mean for families in the US.
In today's episode, we chat with Leo Cuello, J.D., a Research Professor at the Center for Children and Families in the McCourt School of Public Policy at Georgetown University.
Leo helps us understand what Medicaid is and the roles it performs as the U.S. largest health coverage program.
Timeline of the conversation:
2:00 What is Medicaid and how does it impact the disability community? What services does Medicaid cover?
7:00 Medicaid pays 60% of the long-term care, covering nursing homes and 70% of the home and community-based services.
10:00 Medicaid is known by different names in different States, and eligibility criteria for each program may vary. For example in Tennessee, Medicaid is known as Tenncare.
20:00 Home and Community-based waivers or exemptions
25:23 Funding and how does money flow from the Federal to the State level (federal matching dollars per State . According to HUD Exchange, Tennessee receives $1.86 for each healthcare dollar it spends).
36:00 What is Medicaid Expansion? (States not currently enrolled in this program include: AL, FL, GA, KS, MS, SC, TN, TX, WI, WY)
37:00 Implications of Medicaid Cuts for Rural Communities?
41:00 Misinformation that Medicaid Cuts will not affect individuals with disabilities
44:00 What is Fraud, Waste, and Abuse as it relates to healthcare?
51:00 What does Medicaid cuts mean for healthcare providers?
How do States adjust for Medicaid cuts?
1) Change eligibility criteria
2) Change program coverage
3)Cut provider rates
56:00 Call to Action.
Contact your Congress Representative and Senator to tell them what Medicaid means to your family. You can find representatives at the following links: https://www.house.gov/ or https://www.senate.gov/.
If you are comfortable with making a call, contact your representative at the US Capitol Building (202) 224- 3121 and respectfully speak or leave a message advocating for #NoCutsToMedicaid.
Arkansas Health Care
CaliforniaMedi-Cal
ColoradoHealth First Colorado
Connecticut Husky Health
DelawareDelaware Medicaid
Florida Program of All-Inclusive Care for the Elderly (PACE)
GeorgiaGeorgia Medicaid
IllinoisIllinois Medicaid
IowaIowa Medicaid
KentuckyKentucky Medicaid
MaineMaineCare
MarylandMaryland Medicaid
MassachusettsMassHealth
MichiganMichigan Medicaid
MinnesotaMinnesota Family Care
MontanaMontana Medicaid
NebraskaNebraska Medicaid
NevadaNevada Medicaid
New HampshireNH Medicaid
New JerseyNew Jersey Medicaid
New Mexico New Mexico Medicaid
New York New York Medicaid
North Carolina Medicaid
North Dakota North Dakota Medicaid
Episode 140. Transitional Planning and Services for Youth with Disabilities featuring Transition Tennessee
Jessica Awsumb and Hilary Travers are co-leads at Transition Tennessee
Timeline:
2:15 Introduction
3:15 Hilary's work at Perkins School of the Blind and what led her to Vanderbilt and transitional planning
5:00 Jessica's pathway to transitional training and employment for students with IDD.
8:13 How do we prepare for transitions (legal and evidence-based practice), which starts at Age 14 in TN. Key points mentioned:
- 4 future goals in transitional planning are: post-secondary education, employment, community involvement, and community living.
- A Course of Study (9th to 12th grade) is a selection of classes that are needed and individualized to a student to reach their post-secondary goals.
- Annual goal to build competency for life skills.
- Transition Services- a coordinated set of outcome-based activities to supplement after-school goals ( assigned to parent or third-party provider).
18:00 Job Exploration- What would you like to do for work? Your areas of interest? Explore the skills needed for the job in the community.
21:14 Thinking about employment as a family.
23:09 Support of job coaching vs natural supports- team-based approach.
28:24 Job experiences and work-based learning: rural vs urban. What are students' skills? What is their motivation? What are their supports? It will influence their experience. Another consideration is full vs part-time, self-employed.
32:27 VR for formal supports, faith communities are informal supports (these are non-paid opportunities), the Chamber of Commerce, who know the local businesses, and career fairs.
35:00 CTE courses are based on local community needs assessment, and if they align with students' interests, this is a great way for students to gain job skills.
37: 00 Helpful Resources: https://transitiontn.org/ Empowering Youth with Vision Impairments - free resources
Episode 139: Resource Employment Expo featuring speaker Abby McCage
I am excited to introduce you to Abby McCage, who will be one of our presenters at the upcoming Resource Ability Employment Expo to be held on May 7 at the Lannom Center in Dyersburg, TN, from 9- noon.
Hello, my name is Abby McCage, and I am a young woman with a disability who is passionate about advocating for accessibility, inclusion, and equal opportunities. My personal experiences with disability have shaped my understanding of the world and fueled my desire to create change. I believe that everyone should have the chance to participate fully in society, regardless of ability. Through advocacy, I strive to raise awareness, challenge stereotypes, and empower others with disabilities to find their voices. My goal is to inspire and remind people that disability is just one part of who we are — it doesn’t define us, and it certainly doesn’t limit our potential.
Episode 138. Catalyst Sports
In this episode, I chat with Emily Moscoe about Catalyst Sports.
Timeline:
1:30 Introduction to Emily Moscoe and her involvement with Catalyst Sports
3:34 Gol Ball
5:00 Catalyst Sports origin story
8:40 What does adaptive hiking/camping look like
Freedom Chair
12:00 Overview of Catalyst Sports Programs
14: 00 Great Smoky Mountains Bike Program
14: 50 Contact Information and Conclusion
Episode 137. Tech Talk with Peach (My Tech for All) and Milton( TN State Director of Enabling Technology)
Marsh Naidoo welcomes self-advocate Peach Chinratanalab and Milton Neuenschwande from the Department of Disability and Aging for an engaging discussion on the transformative power of technology in the lives of individuals with disabilities.
Peach, a dedicated co-trainer at My Tech for All, shares her experiences and insights on enabling technology to enhance independence and improve daily living skills. From smart microwaves that respond to voice commands to air tags, Peach highlights the importance of accessible tech solutions.
Milton explains the role of the DDA in promoting enabling technology and the exciting developments in the field. Listeners will learn about various tools available for individuals of all ages, including smartwatches that assist with daily routines and innovative applications that foster social interaction and skill development.
00:00 Introduction
02:42 Milton is the State Director of Enabling Technology for DDA
06:03 Peach is a co-trainer at My Tech for All.
07:57 Milton: Peach has a smart microwave that works with Alexa and Google
13:55 Technology is always evolving, right?
16:10 The Department of Disability and Aging has a website for enabling technology
19:07 Smart Home Models in Tennessee.
Don't miss the upcoming Resource Ability Employment Expo on May 7th in Dyersburg, Tennessee, where you can discover more resources for individuals with disabilities!
Episode 136. Lindsey Lind talks about urgency for advocacy (Texas vs Becerra) and AXYS
In Episode 136 of Raising Kellan, Marsh Naidoo sits down with Lindsey Lind from East Tennessee to discuss their shared experiences in the Partners in PolicyMaking program, a leadership initiative by the Tennessee Council on Developmental Disabilities.
Lindsey, a dedicated mother of three, shares her journey navigating the complexities of disability advocacy, particularly focusing on her son who has an extra male chromosome, autism, and ADHD. This episode dives deep into the importance of understanding Section 504 of the 1973 Rehabilitation Act, which protects individuals with disabilities from discrimination in various settings including education and healthcare.
Listeners will learn about Axys, a nonprofit organization supporting families affected by sex chromosome variations, and the implications of the Texas vs Becerra lawsuit that threatens to undermine these critical protections for persons with disabilities. Lindsey emphasizes the need for parents to be informed and proactive in advocating for their children's rights within the educational system, including understanding the differences between IEPs and 504 plans.
Join us for this enlightening conversation, which will highlight the urgency of advocacy in the face of proposed federal changes and the vital role of community support in ensuring that all children receive the accommodations they need to thrive. Don't miss the upcoming Disability Day on the Hill on March 12th, 2025, where you can make your voice heard!
00:00 Introduction
03:53 Lindsey Lind origin story
09:53 What is keeping Lindsey up at night?
18:23 Lindsey: Advocating for school accommodations for kids with disabilities is crucial
21:12 Upcoming events
Episode 135. Maribeth Watson's Advocacy Story (Feb 2025)
Maribeth Watson talks about Partners in PolicyMaking, Morningstar Ministries in Sweetwater TN, and proposed Medicaid budget cuts in 2025 #Protectmedicaid
Timeline:
2:00 Introduction
3:00 Maribeth Watson's backstory
4:00 Morningstar Ministries
8:30 Assessing the needs of your community
11: 00 Respite Resources: Joni and Friends and A Mother's Rest
13:00 Proposed Medicaid Changes
16:00 Conclusion and Words of Encouragement!
Episode 134. "McKenzie Can Talk" A Children's Book written by McKenzie & Tamara Tuckson, Nashville TN
In Episode 134 of Raising Kellan, Marsh Naidoo engages in a heartfelt conversation with Tamara Tuckson, a passionate disability advocate and co-author of the book McKenzie Can Talk. Tamara shares her journey as a mother to McKenzie, who was diagnosed with Rett syndrome, and how that diagnosis ignited her advocacy work to eventually found Mission2Advocate. This episode delves into the challenges of navigating the educational system, the importance of understanding rights, and the transformative power of communication devices in McKenzie's life.
Tamara discusses her mission to empower other parents through her organization, Mission2Advocate, and how her experiences led her to become an advocate. She emphasizes the significance of giving children like McKenzie a voice and the impact of inclusive practices in schools. Tamera also shares exciting news about their upcoming projects, including a new book in the "McKenzie Can" series.
Join us for this inspiring episode that showcases resilience, advocacy, and the importance of community support. Don't forget to check out Tamara and Mackenzie's book available on Amazon. The book was illustrated by Katie Grayson and published by Traitmaker Media.
00:15 Introduction
01:40 McKenzie and Tamara’s backstory
02:09 Rhett Syndrome
04:00 Educational Experiences
06:43 How Tamara facilitated McKenzie’s communication
07:44 Communication Devices
10:09 McKenzie!
11:02 The book “McKenie Can Talk”
20:00 Mission to Advocate was formed in 2022 to help parents become entrepreneurs
23:32 What next for McKenzie and Tamara?
Mark your calendars for Disability Day on the Hill on March 12th, 2025, in Nashville, Tennessee!
Episode 133. Disability Inclusive Employment Imagined - Anna Fields of Bubble Love, Nashville TN
In this episode, Anna Fields discusses her journey from a homeschooled upbringing to creating an inclusive workplace that champions individuals with disabilities. Learn about her experiences working with children in China, her challenges when starting Bubble Love, and how she found innovative ways to integrate employees with disabilities into her business. This conversation highlights the importance of community, empathy, and creativity in fostering an inclusive environment.
Timeline
1: 40 Anna's backstory
6:00 China to Nashville
7:00 Bubble Love's History
8:40 What is Bubble Tea?
11:00 How the business grew.
15:00 Anna talks about #HireMyStrengths.
17:00 What Peach brings to the business.
18:30 McKenzie Tuckson and her AAC device.
23:00 Conclusion
Join us for this heartfelt discussion that emphasizes the power of inclusivity and the joy of bringing people together through shared experiences. Don't forget to rate and review this episode, and mark your calendars for the Resource Ability Employment Expo on May 7th, 2025!
Episode 132. Plant for a Change - Creating an inclusive & accessible conservation workforce
Plant for a Change is a for-profit social enterprise based in Nashville, Tennessee, aiming to create an inclusive and accessible conservation workforce. The company sells native plant seeds and provides employment opportunities for individuals with intellectual and developmental disabilities.
Timeline of our conversation:
1:44 Introducing Nathan Fields and Jason van Wulven
4:17 Nathan's proximity to the disability community and how that evolved with pursuing his Master's in Special Ed at Vanderbilt University and to meeting Jason at Next Steps (Best Buddies is also mentioned)
9:02 Next Steps at Vanderbilt University
9:16 What does a day look like for Jason and Nathan at Plant for a Change
13:34 Developing new products
13:53 Eco footprint
15:16 Keystone (regional) plants/trees etc
20:14 Family Life
21:55 Vision for Plant for a Change
26:30 Disability Employment Statistics
28:00 Care Farming Network
29:00 Conclusion
Episode 131. Community Health & Wellness Fair - Spotlight on Dyersburg Lions Club
The Future City Health & Wellness Fair was a resounding success! Coming up next is a similar event at Bruce Community Center on Jan 25, 2025, from 1-3 pm.
In this episode, I chat with Lisa Vinson about the work done by the Lions Club and the revitalized Dyersburg Lions Club which is actively recruiting members. For more information contact Mark Cantara at mcantara57@gmail.com or Robin Cantara at robincantara2014@gmail.com.
Episode 130: Wheelchair basketball with Tommie Lee Gray III
Episode 129. Community Health Fairs in Dyersburg TN featuring Victor McLin, Director Bruce Community Center
Welcome to the latest episode of Raising Kellan, where host Marsh Naidoo chats with Victor Mclin, the dynamic director of Bruce Community Center in Dyersburg, Tennessee.
As we wrap up 2024 and look forward to a promising new year, Marsh and Victor discuss the upcoming community health screenings scheduled for January 4th at Future City Rec Center and January 25th at Bruce Community Center. These events, held from 1 to 3 PM, will feature essential health services provided by Lions Club International, Dyersburg State Community College, TCAT, and the local health department.
Victor Mclin, who also serves as a pastor and Dyer County Commissioner, shares insights into his extensive experience with community programs, emphasizing the importance of family structure and community engagement. From senior exercise sessions to youth basketball leagues, after-school programs, and a rich summer schedule, the Bruce Community Center offers a variety of activities designed to foster a sense of belonging and community spirit.
Listeners will gain a deeper understanding of the center's role in preserving local history, with its recent designation as a historical site, and the Bruce Museum, which chronicles the legacy of one of the historically black schools in the area. Victor passionately discusses the value of reconnecting with family roots and how these efforts contribute to a stronger community fabric.
Join Marsh and Victor as they explore ways to strengthen community ties and prepare for a healthier future. Don't miss the opportunity to participate in the community health fairs and take advantage of the vital screenings and resources available.
00:00 Two community health screenings in January
01:36 Victor Mclin is the director of Bruce Community Center in Tennessee
06:37 Family structure
For further details on the health screenings and community programs, email raisingkellan@gmail.com. us. We look forward to seeing you there and to a positive start to the new year!
Part 2. How to Build a Thriving Marriage as you Care for your Children with Disabilities with Kristin Faith Evans
Part 1. How to Build a Thriving Marriage as you Care for your Children with Disabilities with Todd Evans
In this episode of Raising Kellan, host Marsh Naidoo engages in an enlightening conversation with Todd Evans, co-author of the book "How to Build a Thriving Marriage as You Care for Your Children with Disabilities." Todd shares his journey with his wife Kristen, from their initial meeting in college to navigating the complexities of raising children with special needs while maintaining a strong marital bond.
Todd discusses the significance of communication in marriage, especially when parenting children with complex medical needs. He emphasizes distinguishing between 'feelings' and 'problem-solving' conversations to prevent misunderstandings and strengthen relationships. The conversation also delves into the intersection of faith and disability, highlighting how faith has been a cornerstone for Todd and Kristen throughout their journey.
The episode offers personal experiences and practical insights, providing valuable guidance for parents facing similar challenges. Todd's story is one of resilience, faith, and the power of communication in building a thriving family life.
01:04 Todd and Kristen write a book about raising children with special needs
06:01 Communication
12:08 The misnomer that 80% of couples end up in divorce when raising a special needs child
14:11 Faith
21:44 What has Todd excited about the future of his family
24:03 Conclusion
Stay tuned for part two of the interview with Kristin Evans, coming soon!
Todd's podcast episode with David Hirst of the Dad to Dad Podcast https://21stcenturydads.org/352-todd-evans-of-brentwood-tn-business-owner-author-father-of-two-children-with-disabilities/
Todd and Krstin's website https://disabilityparenting.com/
Episode 126. How to help your Child Communicate and Facilitate Language with Dinalynn Rosenbush SLP
In episode 126 of Raising Kellan, host Marsh Naidoo welcomes DinaLynn Rosenbush, a parenting coach, speaker, and experienced speech and language pathologist, to discuss the intricacies of communication in children, particularly in the presence of speech delays.
Dinalynn, who hosts the acclaimed Language of Play podcast, shares her insights on how parents can better understand and support their children's communication development.
The speakers explore these vital topics, providing parents with the tools to support their children's communication journey and foster deeper connections.
00:00 This podcast features interviews with parents raising children with disabilities
02:19 Dinalynn's origin story.
08:44 In the presence of speech delay, parents can embed communication in everyday life.
10:33 Communication devices for nonverbal children.
14:40 What is play? Is it important?
15:25 Top 3 Episodes on the Language of Play Podcast.
16:34 What has you excited about the future?
Top 3 Episodes on the Language of Play Podcast.
04 One-Year-Old Language Learning with a Book
https://podcasts.apple.com/us/podcast/04-one-year-old-language-learning-with-a-book/id1661880535?i=1000591739925
2 What is Play ? and Why is it so important?
90 What Does Improv Have To Do With Parenting? EVERYTHING!! with Chris Trew
MOST POPULAR THIS MONTH -
184 Do Your Habits Reduce Your Child’s Need To Speak? 4 Strategies To Build Opportunities For Communication Growth
TeleTherapy Services, your online physical therapy provider, brings this episode to you. Remember to rate and review on your podcast platform and share this episode with friends who might find it helpful.
Episode 125. Top Christmas Gift Picks 2024 with Vanessa Naidoo, OT
In episode 125 of the Raising Kellan Podcast, host Marsh Naidoo welcomes Vanessa Naidoo, a pediatric occupational therapist from Hernando, Mississippi, to share her curated Christmas gift list for children with disabilities. Vanessa's list is filled with creative and thoughtful ideas that promote independence, skill development, and fun for kids of all ages.
Vanessa emphasizes the importance of gifts that offer experiences, such as makeup lessons at Sephora or cooking classes, which can boost self-esteem and life skills. For younger children, she recommends toys from Lovevery, known for their Montessori-inspired designs that cater to sensory needs. Vanessa also highlights the benefits of seating options like zero gravity bean bags, wiggle cars, and tonie boxes, which encourage imaginative play and auditory comprehension.
Join Marsh and Vanessa as they explore these unique gift ideas that go beyond the traditional, aiming to create meaningful and memorable experiences for children and their families.
00:00 Introductions
02:40 Picks for teens - EXPERIENCES
07:05 Lovevery
09:16 Pillow Forts
09:30 Zero Gravity Bean Bags
13:30 Wiggle Cars
14:42 Tonie Boxes- This is an excellent toy for promoting auditory comprehension and just your imaginative play
16:36 Hobbies
17:28 Emotion Games- help kids with verbal expression skills
20:00 Conclusion
This episode is brought to you by TeleTherapy Services, your online physical therapy provider. Don't forget to rate and review on your podcast platform and share this episode with friends who might find it helpful.
Episode 124. Medicaid Alternative Pathways
Marsh Naidoo chats with Brandon Scarmardo, a Manager at Mental Health and Development Services in Jackson, Tennessee, about the MAPS program. This innovative three-year pilot initiative, facilitated by the Department of Disability and Aging (DDA), is designed to empower individuals with intellectual and developmental disabilities by equipping them with skills for independent living and employment.
The discussion delves into the structure and objectives of the MAPS program, emphasizing its flexible approach to support and its focus on creating virtual community resource maps. These maps serve as personalized digital tools that assist participants in navigating their daily lives and achieving selected milestones. Brandon highlights the importance of technology in the program, mentioning tools like smart pill dispensers and Ring doorbells that enhance independence and safety for participants.
01:54 Brandon's background
03:26 What is Maps?
06:13 Technology and the program including virtual resource maps
08:31 The inclusion criteria for this program.
10:27 Examples of how the program is integrated into daily life
15:41 Technology
20;00 Conclusion
Episode 123. Adaptive Driving with Woody Tatman OTR from West Tennessee Healthcare
Woody Tatman is an occupational therapist and a certified driving rehabilitation specialist with West Tennessee Healthcare. He evaluates individuals, including those with disabilities, the elderly, and those with cognitive or physical impairments, to determine their ability to drive safely. He can recommend vehicle modifications and provide training to help people learn to drive according to their needs.
00:12 Introduction
02:10 What is a certified driving rehabilitation specialist?
04:03 Does a rehab specialist do the vehicle modifications or the driving lessons?
05:51 What is the process to sign up for adaptive driving and how is it funded?
08:49 Learners Permit.
10:54 Seniors Driving Ability Testing.
12:47 Driver Lessons and Vehicle Used?
13:53 Modifications for Driving in Different Patient Populations?
18:07 Color Blindness, Hearing, and Sight Impairment.
21:08 Conclusion and Resource aded.net
This episode is brought to you by Teletherapy Services.
Episode 122. Tennessee State Parks Accessibilty Initiative
In this insightful episode of Raising Kellan, host Marsh Naidoo sits down with Don Tate and Kim Shofinski from the Tennessee State Parks to discuss the incredible strides being made toward accessibility and inclusivity in outdoor recreation. As the Fall unfolds in Tennessee, there's no better time to explore the state's natural beauty, and the Tennessee State Parks are committed to ensuring that everyone, including families experiencing disabilities, can enjoy these experiences.
Kim provides clarity on the distinction between the Tennessee State Parks and the national park system, highlighting the state's dedication to making the parks accessible to all. Don shares the inspiring journey of the Tennessee State Parks' initiative to become the most accessible state park system in the nation, collaborating with various organizations to enhance accessibility features like all-terrain wheelchairs, adaptive kayaking and canoe launches, and comprehensive trail assessments.
The conversation also covers the exciting virtual reality projects that allow visitors to explore parks like Dunbar Cave and Frozen Head State Park from the comfort of their homes. These initiatives ensure that everyone, regardless of physical ability, can participate in the rich educational and recreational experiences the parks have to offer.
00:00 Raising Kiln podcast features interviews with Tennessee State Parks
02:00 Don Tate is working to improve accessibility at Tennessee state parks
08:42 Tennessee state parks are currently updating their website to include accessible features
10:01 Salute to Service Program
12:57 Virtual Reality allows visitors who cannot physically visit the park to participate in interpretive programming
15:18 Don Tates message to families that have the disability experience
17:47 Explore Tennessee State Parks VR App
For more information, visit TnStateParks.com and download the "Explore Tennessee State Parks" app available for Apple and Android devices.
Don't forget to rate and review on your podcast platform.
This episode is brought to you by Teletherapy Services
Episode 121: Two moms discussing renovations to improve their home accessibility
In this episode of Raising Kellan, host Marsh Naidoo reconnects with Dana Kramer to discuss an essential topic for families raising children with disabilities: home accessibility. Dana, a long-time friend and recurring guest, shares her recent experience remodeling her home to better accommodate her son Levi, who has cerebral palsy. The conversation covers practical tips and insights on making living spaces more accessible, from installing ramps and adaptive vanities to choosing the right grab bars and shower setups. Dana also highlights the importance of community support and the joy of seeing her son gain more independence. Tune in for invaluable advice and heartwarming stories that can help guide your own journey in creating a more accessible home environment.
00:00 The Raising Kellan podcast features interviews with parents raising children with disabilities
01:54 Dana’s home remodeling for Levi.
07:31 Bidet and vanity
14:55 The shower.
28:19 Marsh Naidoo thanks Dana for sharing her tips on making homes accessible
For more information, visit the Adaptive Living Store at adaptivelivingstore.com.
Episode 120. Adaptive Rock Climbing with Mia Fox, DPT from Memphis Rox
Mia Fox DPT, is a yoga teacher, physical therapist, and rock climber. Mia talks about how she got started in rock climbing and the therapeutic benefits it provides. The conversation then shifts to discussing Memphis Rox, a rock climbing community, and the adaptive climbing program they offer through the Adaptive Climbing Group. Mia explains that the adaptive climbing program aims to create a community for climbers with disabilities and provide them with access to equipment and training. She provides information on how families experiencing disability can join the program and mentions the free monthly rock climbing clinic held on the First Tuesday of the month.
Timeline: 1:12 Introduction to Mia Fox, DPT 3:31 What is Memphis Rox? 6:34 Memphis Rox partnership with Adaptive Climbing Group 10:12 Therapeutic Benefits of Rock Climbing 14:14 Therapy made FUN! 16:16 How much modification can be done on the Wall? 20:30 FREE Rock climbing Clinic on the FIRST TUESDAY of each month
Episode 119. Digital Accessibility and Safety with Dennis Anderson, CEO of Anderson Consulting
Join host Marsh Naidoo in this episode of Raising Kellan as she talks with Dennis Anderson, CEO of Anderson Consulting. Dennis shares his expertise on digital accessibility and safety, providing valuable insights for parents navigating the digital world. 00:00 Introduction 01:30 Dennis Anderson's background 05:00 Business IT services and government contracts 10:00 Residential IT services and accessibility tools 15:30 Common accessibility tools 20:00 Digital safety tips for parents 30:00 Top accessibility features 35:00 Smart assistants and speech-to-text technologies 40:00 Contact information and services 45:00 Anderson Custom Crafts 50:00 Closing remarks For more information, visit Anderson Consulting's website at andersonconsulting.us and follow their Facebook page for Tech Tuesday updates. Don't forget to rate and review on your podcast platform. Stay connected and continue to reach the top of your mountain!
Episode 118. Wrap up of 113th Tennessee General Assembly and Legislation Impacting the Disability Community ( Follow up Episode 111)
In this episode of Raising Kellan, host Marsh Naidoo sits down with Jeff Strand from the Tennessee Disability Coalition to delve into the significant legislative changes in 2024 and what's on the horizon for 2025. Jeff provides an insightful update on key bills, including the successful passage of the TCA cleanup bill, the impactful Right to Repair legislation for wheelchair maintenance, and the groundbreaking Medicaid buy-in program for working adults with disabilities. They also discuss the ongoing efforts and challenges in implementing paid family caregiving and the evolving landscape of special education policies. Tune in to understand how these legislative efforts are shaping the lives of individuals with disabilities in Tennessee.
00:00 Introduction and welcome
02:00 Recap of Jeff Strand's previous appearance on episode 111
04:30 Updates on the TCA Placard Bill (modernization of language)
07:45 Right to Repair Part Two for wheelchairs.
13:20 National recognition of Tennessee's right to repair legislation
15:00 Medicaid buy-in program for Working Adults with Disabilities
27:00 Paid Family Caregiving Resolution
34:00 Medicaid home and community-based services waiver
38:00 Discussion on congregate accommodation for individuals with disabilities
45:00 Future legislative efforts and community involvement
55:00 Closing remarks and call to action
For more information, visit the Tennessee Disability Coalition's website at tndisability.org. Don't forget to leave a rate and review on your podcast platform, and stay connected with
Episode 117. Interview with Rev Dr Felicia Ingram of Salters Chapel AME Church
In this enlightening episode of Raising Kellan, host Marsh Naidoo is joined by Rev Dr. Felicia Ingram, the newly appointed pastor at Salters Chapel AME Church in Dyersburg, TN.
Felicia is a native of Dyersburg and a graduate of Dyersburg High School. She highlights her plans for engaging the youth and fostering a supportive community. Don't miss out on the upcoming Youth Fun Day on June 8, this Saturday from 9 am -1 pm at Salters Chapel, it is a perfect opportunity to connect and enjoy a day of fun and fellowship.
00:00 Felicia Ingram is the newly appointed pastor at Salters Chapel AME Church
05:43 Salters Chapel in Dyersburg seeks to engage in community needs
10:23 Felicia: Salters Chapel is going through a rebuilding phase.
Episode 116. Camp NaCoMe with Dyersburg FUMC KidMin Retreat
In early May 2024, our Dyersburg First United Methodist Church church family went on a camp retreat to Camp NaCoMe in Centerville, Tennessee. In this episode, Kellan journals his time at Camp as he builds his capacity to tell his story. Enjoy!
Other links:
https://youtu.be/yWNwOpg_qbA?si=gqPGtHI4V9vqzNBO
Episode 115. The Science of Music Therapy and why it is so Effective in Early Intervention(Martha Summa Chadwick)
Welcome to episode 115 of Raising Kellan, where we delve into the harmonious world of music therapy. Our guest is Martha Summa Chadwick, a virtuoso pianist, music educator, and advocate for the transformative power of music therapy. Join us as we explore the neural symphony of music's impact on the brain and how it can be a powerful therapeutic tool for individuals across the lifespan. This episode is dedicated to the memory of Steven Harrell. As a reminder, the content on our podcast is for informational purposes only, so please consult a trained professional for advice tailored to your specific situation.
Now, let's tune in to an enlightening discussion that might just change the way you think about music and its potential to heal and empower.
00:00 This podcast is dedicated to the memory of Stephen Harrell
01:26 Martha Sumer Chadwick is an advocate for music therapy
02:21 You teach music therapy for children with autism
05:38 Marta says music can be a powerful therapeutic tool for stroke victims
08:44 Rhythm and entrainment play an important role in music therapy
14:01 Music is beneficial when you use it for music enrichment, for instance
19:07 Martha has worked with children with autism and developed notes to block
For more information, visit Martha's website at marthasumma.com and explore the Notes to Blocks program at musictherapygatewayincommunications.org (mtgic.org). Don't forget to leave a rate and review on your podcast platform, and feel free to contact us at raisingkellanmail.com. Thank you for joining us on this melodic journey, and remember, keep climbing your mountain. Until next time, this is Marsh Naidoo signing off.
Episode 114. Beyond Six Seconds Podcast
In today's episode 114, Carolyn Kiel from Beyond Six Seconds Podcast joins us. Carolyn talks to neurodivergent entrepreneurs, creators, advocates, and more about their lives and identities, their stories, shatters misconceptions, breaks stigma, and showcases the vibrance of neurodiversity. As always, remember, the content on this podcast is for your information only, and if you seek specific advice for your situation, always contact a trained professional. The episode is dedicated to the memory of Steven Harrell.
Timeline
2:06 A little about Carolyn Kiel
6:00 How did the transition from singing to podcasting happen?
11:39 Carolyn's pursuit of a diagnosis of Autism
12:46 What are Carolyn's drivers?
15:00 Standout moments on the podcast
18:21 What next for the podcast?
20:42 Valuable insights that Carolyn has learned from podcasting
A transcript will be soon available at www.raisingkellan@gmail.com
Episode 113: Kellan's Impromptu and Summer Updates
Thank you for joining us on Raising Kellan, a podcast to empower parents raising children with disabilities. Kellan is starting to build his breath control and confidence on the mike! You will be hearing from him more as he begins to tell his own story!
Today's episode is dedicated to the memory of Steven Harrell
Episode 112. March 25, 2024 Cerebral Palsy Awareness Day
Levi, Drake and Kellan chat on their annual meetup to honor CP Awareness Day.
Timeline:
2:52 Drake's new job at Dyersburg State Community College
3:37 Kellan's first podcast!
4:21 Levi's 7th Grade will be at High School!
5:16 Drake's upcoming engagement
5:52 Levi's Trip to Gatlinburg
7:17 Levi's therapy
9:11 Kellans' classes
10:03 Levi's favorite subject
11:30 Coach Tim Strayhorn and the Lady Trojans
13:13 Plans for CP Day
14:34 Plans for Nashville
10:15 Levi's new home gym
16: 15 Shout out to Ms Lillian!
Episode 111: Jeff Strand from TDC- 113th TN General Assembly
Jeff Strand Coordinator of Government and External Affairs from the Tennessee Disability Coalition will discuss the Priority Bills for Part 2/2 of the 113th Tennessee General Assembly. Here is a link to what we discussed last year (2023) on Episode 78
TDC Priority Bills for 2024
1) TennCare for Working Adults, where persons with disabilities can potentially buy into TennCare services (like HCBS) by paying a premium. Eligibility to participate in this program will exclude present income and asset thresholds, making Tennessee the 47th State that could allow for this provision.
2) Paid Family Caregiving Resolution. As Jeff explains, this resolution would urge TennCare to work with community stakeholders to develop a comprehensive statewide paid family caregiving policy and program. If TennCare is unable to provide a solution in 2024, then TDC could write a Bill and bring this before lawmakers in 2025.
3) Right to Repair, Part 2. This Bill will require payors to pay for wheelchair maintenance and make provisions for "less complex" repairs, like flat tires, to be made by independent repair persons.
4) HB 2497/SB2146 will exempt two organizations from building dormitory-style, congregate living spaces within the State and bypass the State's anti-institutionalization laws, which prohibit the residence of more than four unrelated persons with disabilities in a group home or less than 500 yards from another group home.
Wins: The Tennessee Drivers Placard language was cleaned up to modernize the language of the law.
The transcript of our conversation will be available at www.raisingkellan.org
Episode 110. Part 2 of Vocational Rehab. PRE-employment transition services with LeeAnne Pierce
In this podcast episode, Leanne Pirece from Pre-Employment Transition Services (Pre-ETS) talks about this unique program through the Tennessee Department of Human Services. Pre-ETS is a program that helps students between the ages of 14 and 22 with disabilities prepare for life after high school. The program offers services such as career counseling, advocating for oneself, budgeting, and basic life skills. Leanne explains that Pre-ETS works closely with Vocational Rehabilitation (VR), which helps students find jobs or pursue further education after high school. She emphasizes the importance of parents understanding that the Individualized Education Program (IEP) does not follow the student to college or a job, and Pre-ETS and VR can help with the transition.
Timeline:
2:18 What is Pre -ETS?
4:17 How do Pre-ETS and Vocational Rehab work together?
6:50 Upcoming Resource Fair: March 28, 2024
10:30 How does a parent connect with Pre-ETS?
This episode is brought to you by Teletherapy Services LLC. Physical Therapy that gets you in motion.
Episode 109. Part 2: Assistive Technology with Jennifer Cunningham, OTR of the Star Center.
In this episode of the Raising Kellan podcast host Marsh Naidoo interviews Jennifer Cunningham, Vice President of Client Services at the Star Center in Jackson, Tennessee. They discuss assistive technology services such as pencil grips, screen readers, and augmentative communication devices for those who cannot speak. The Star Center provides vision services, including orientation and mobility training, as well as communication devices for individuals with speech impairments. They also have a grant program for farmers with disabilities called Tennessee Ag Ability. The services statewide through partnerships with vocational rehabilitation programs and the Tennessee Technology Access Program.
Timeline:
02:20 Jennifer Cunningham Introduction
03:46 What is assistive Technology
05:58 Services for the vision impaired
06:13 Orientation and Mobility expert
07:24 Magnifers and optical character recognition
09:14 Speech-to-Text or Voice-to-Text
10:59 Communication devices
13:25 Insurance
17:21 Statewide services offered by the Star Center
20:46 Tennessee Agribility
23:00 Conclusion
Episode 108. Part 1: The Star Center in Jackson TN featuring Dr Jennifer Graves
Host Marsh Naidoo interviews Dr. Jennifer Graves, the president of the Star Center in Jackson, Tennessee. Dr. Graves discusses her connection to disabilities and her passion for helping individuals with differing abilities. She explains how the Star Center was founded by Margaret and Chuck Doumitt who wanted to provide services for their children with Batten's Disease. The center offers a wide range of services, including music therapy, assistive technology, employment services, and a reading clinic for individuals with dyslexia. She encourages listeners to reach out to the Star Center for more information on their services.
Timeline:
00:33 Introduction
02:33 Dr Jennifer Grave's backstory
05:21. Dr Grave's career and how she became involved with the Star Center
06:53 The origin of The Star Center and the story of Margaret and Chuck T, Doumitt
11:48 Services provided for pediatric clients
12:10 Music Therapy
14:32 Vocational Rehab
16:03 Reading Programs
21:35 Homecare
23:33 Conclusion
Linked episodes: Part 2 Assistive Technology with Dr Jennifer Cunninham at The Star Center https://spotifyanchor-web.app.link/e/koMT7zTOBHb
The episode is sponsored by Anderson Consulting your one-stop IT shop!
Episode 107. Hope Heals Camp Experience with Kim Larrick
In this podcast episode, the host, Marsh Naidoo, interviews Kim Larrick about their experience at Hope Heals Camp. Kim shares that her son, Ben, has a rare genetic condition called Menkes disease, which affects his mobility and other aspects of his health. Her daughter, Kelsey, has cerebral palsy and epilepsy. Kim and her family learned about Hope Heals Camp through Instagram and decided to apply. Kim and Marsh discuss their favorite moments at the camp, including worship sessions, mom's party, and the talent show.
Timeline:
2:18 Introduction by Kim Larrick
4:25 Ben and Menkes Disease6:01 Kelsey and Cerebral Palsy
7:52 How did you learn about Hope Heals Camp
10:50 Camp experience12:11 The Road to Nauvoo Alamba
13:34 Highlights of Camp15:41 Kim and teaching elementary school.
17:06 Managing time and the work-life balance when you have a child/children with disabilities.18:06 RoundupThis episode is brought to you by Anderson Consulting. Your one-stop shop for all your IT needs
Another episode related to a Camp Experience is Episode 83: Camp Conquest
https://podcasters.spotify.com/pod/show/marsh-naidoo/episodes/Episode-83--Camp-Conquest-e21fvvj
Epsiode 106. Equipment Drive for Kali Decker's Mission Trip to Masinidi, Uganda.
In this podcast episode, Marsh Naidoo interviews Kali Decker, a pediatric physical therapist who recently went on a mission trip to Uganda. Kali discusses her journey to becoming a pediatric physical therapist and the need for specialized care for children with disabilities. She also talks about the equipment drive being organized to collect pediatric equipment such as wheelchairs and walkers for her upcoming mission trip. The goal of the mission trip is to provide sustainable care and improve the quality of life for children in Uganda. Listeners are encouraged to donate equipment and support the project.
Timeline:
02:55 Kali Decker's Background and what put her on the trajectory to becoming a pediatric PT.
5:13 Kali's mission trip to Masindi.
6:31 Kim Decker and The Fellow of Christian Athletes (FCA)
7:46 Planned Equipment Drive for Kali's Mission Trip.
8:28 Items needed.
10:30 Our take on helping locally and internationally.
12:30 Kali relates Noah's story of mobility.
14:02 What is OneWorld Health?
15:12 Kali's plug to participate in the Equipment Drive.
17:36 Closing Remarks
This episode is sponsored by Dennis Anderson of Anderson Consulting in Newbern TN
Episode 105. Part 1 Vocational Rehabilitation with Ashley Roberts
Today we chatted with Ashley Roberts, MRC, CRC vocational rehabilitation field supervisor here in NortWest TN.
Timeline:
3:27 What is vocational rehabilitation (VR)?
3:54 Who does VR service and what services does it cover?
4:16 How can parents get connected with VR?
5:47 Is VR part of school and when do you enroll for services?
11:58 Does VR involve finding independent living solutions?
14: 06 Can VR coincide with other employment services?
15:39 Conclusion.
The transcript of this podcast can be found at www.raisingkellan.org
This episode is sponsored by Anderson Consulting in Newbern, TN